Your Route to Real News

'Einstein' toddler may have 'crazy hair' disorder that affects just 100 people

726     0
Nellie Butler with her "crazy" hair (Image: Lydia Bunch / SWNS)
Nellie Butler with her "crazy" hair (Image: Lydia Bunch / SWNS)

A toddler with 'Albert Einstein' hair is thought to be one of only 100 people in the world with the 'crazy' hair disorder.

Lydia Bunch's daughter Nellie Butler, two, is thought to have Uncombable Hair Syndrome - a rare disorder that means your hair is frizzy and can't be combed flat. Only around 100 people around the world have been officially diagnosed with the genetic condition and it is even believed Albert Einstein had the disorder.

But Lydia, 25, says that styling Nellie's hair is nearly impossible and that she even sometimes struggles to get it into a ponytail sometimes because 'it's just crazy.' She said: "She could have her hair just down but it's just crazy. I normally try and put her hair in two ponytails.

"It is quite hard to brush but luckily it's easier to brush after she's had a bath. It's just hard to get it in a ponytail because it's just everywhere, so you can't really do that."

When Nellie was born in April 2021, she had dark blonde hair that then turned to a more ginger colour. But when she was around nine months old, Nellie's hair started becoming 'really light and almost frizzy.'

People are just learning what the symbol on their shampoo actually means qeithiqeriddhprwPeople are just learning what the symbol on their shampoo actually means
'Einstein' toddler may have 'crazy hair' disorder that affects just 100 peopleThe youngster has hair that is impossible to comb flat (Lydia Bunch / SWNS)
'Einstein' toddler may have 'crazy hair' disorder that affects just 100 peopleThe toddler gets lots of compliments (Lydia Bunch / SWNS)

Lydia said: "She didn't have much hair when she was born, it was quite dark blonde and then it went a bit ginger. She did have little waves in her hair at first. Then when she was around nine or ten months old, her hair started becoming really light and almost frizzy."

Lydia had never heard of the rare condition before and only realised her daughter could have the disorder, after some of her family members told her about it. Even though she's not been officially diagnosed yet, Lydia says people keep telling her that Nellie must have the condition.

The mum-of-one said: "I hadn't heard about it until a couple of my family members told me about it. She's not been diagnosed with it but people have been telling me that she's got it. Apparently it is genetic, but I've got straight her and her dad has got curly hair so nothing like Nellie's."

'Einstein' toddler may have 'crazy hair' disorder that affects just 100 peopleShe is thought to be one of only 100 people in the world (Lydia Bunch / SWNS)

The mum-of-one says that Nellie 'gets a lot of attention' nearly every time she leaves the house, because of how unique her hair is. But she says that the youngster 'doesn't really realise' that she has the rare condition, because she's so used to her own hair.

Lydia, of Grimsby, Lincolnshire said: "People always say they've never seen hair quite like this - they love it. She gets a lot of attention because of her hair. Nellie doesn't really realise but I've showed her some pictures of her hair and she said 'my hair is big.'

"I don't think she really understands yet because she's so used to it. Nobody ever says anything rude, they love it and she gets a lot of compliments from people."

Izzy Hawksworth

Print page

Comments:

comments powered by Disqus